Emma's World: Putting the kids on the gluten free diet

Sunday, January 4, 2009

Putting the kids on the gluten free diet

Since our adopted babies, Matthew and Emma, are really my biological grandchildren, they have a chance of having problems with gluten because I have celiac disease and their cousin Carly (my other granddaughter) has celiac disease. But I just found out recently that the kids biological father, Marcus, may have gluten issues himself, and that his brother had MS and celiac disease! The babies have the double whammy (celiacs on both sides of the family)!

Emma has the HLA DQ2 gene, so she definitely has a chance of developing issues with gluten. Both she and Matthew have skin problems like eczema and keratosis pilaris, which can be associated with celiac disease.

So I've decided that the WHOLE FAMILY goes gluten free as of NOW! We went to Whole Foods and bought gluten free crackers and chicken nuggets, and since I've now started making gluten free bread I think we're all set!

1 comment:

JoAnn said...: Thanks for your nice comment, Deborah! My posting has been somewhat sporadic, but one of my New Year's Resolutions is to do a better job and post more often (with pictures!)

Take care,
JoAnn; January 4, 2009 at 8:19 PM

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Purpose of this blog

My daughter, Emma Clarissa, is a beautiful, affectionate, sweet, brave, intelligent little girl who just happens to have multiple serious medical diagnoses.

This blog focuses on her triumphs, challenges and day-to-day life as she contends with both TAR Syndrome (Thrombocytopenia Absent Radii Syndrome, a rare condition which causes skeletal abnormalities and low platelet counts) and GLH Syndrome (aka cerebello-trigeminal-dermal dysplasia, an extremely rare disorder associated with a cerebellar malformation known as rhombencephalosynapsis).

In addition to these diagnoses (or in many cases, because of them), Emma also has microcephaly, global developmental delays, Failure to Thrive, GERD, asthma, and tone and mobility issues (e.g., cerebral palsy).

This blog also provides a place to post helpful links to sites with information on these conditions as well as online support groups. Support groups can be invaluable to parents of children with medical problems, who frequently feel isolated and/or need answers STAT!

WARNING: occasionally a post or comment may contain references to God, or offer thanks or praise to God. We acknowledge His hand in our lives and in Emma's, and thank Him for all He has done and is doing.