Emma's World: Got her!!

Tuesday, September 8, 2009

Got her!!

Finally managed to catch the wild monkey (aka Emma) in action....getting up on her own with NO HELP AT ALL! I hope you enjoy the video! :)

6 comments:

holly said...: That is just so awesome!!!!! She did it like a pro. Go Emma!!!!!; September 11, 2009 at 5:56 PM
Keri said...: Watching Emma and her astounding accomplishment brings me such joy! She is such a doll! Way to go big girl!; September 12, 2009 at 9:24 PM
JoAnn said...: Thanks Holly and Keri! I know that you both understand exactly how wonderful this is!

Emma is SO incredibly proud of herself...it's really cute the way she says, "Look at me! I'm standing up!" with an enormous smile on her face!; September 12, 2009 at 9:46 PM
ds.mama said...: Wow, wow, wow! Go Emma! This is wonderful to see :-); October 29, 2009 at 6:44 AM
Rose and the Princesses said...: hello I came across your site and I wanted to say your daughter is just beautiful! My daughter has developmental delays and was diagnosed with Failure to Thrive.; November 17, 2009 at 1:43 PM
Cassandra said...: This is wonderful to see her stand up!; June 3, 2010 at 8:23 PM

Purpose of this blog

My daughter, Emma Clarissa, is a beautiful, affectionate, sweet, brave, intelligent little girl who just happens to have multiple serious medical diagnoses.

This blog focuses on her triumphs, challenges and day-to-day life as she contends with both TAR Syndrome (Thrombocytopenia Absent Radii Syndrome, a rare condition which causes skeletal abnormalities and low platelet counts) and GLH Syndrome (aka cerebello-trigeminal-dermal dysplasia, an extremely rare disorder associated with a cerebellar malformation known as rhombencephalosynapsis).

In addition to these diagnoses (or in many cases, because of them), Emma also has microcephaly, global developmental delays, Failure to Thrive, GERD, asthma, and tone and mobility issues (e.g., cerebral palsy).

This blog also provides a place to post helpful links to sites with information on these conditions as well as online support groups. Support groups can be invaluable to parents of children with medical problems, who frequently feel isolated and/or need answers STAT!

WARNING: occasionally a post or comment may contain references to God, or offer thanks or praise to God. We acknowledge His hand in our lives and in Emma's, and thank Him for all He has done and is doing.