Emma's World: Emma has her Rifton walker!!

Sunday, February 22, 2009

Emma has her Rifton walker!!

We did buy a used Rifton walker a while back but it turned out to be much too big for her. Well, she'll grow into it eventually. This walker is on loan from California Children's Services.

Here's her first attempt at using the walker at home....she's only allowed to be in it 10 - 15 minutes at a time, but she can use it several times per day. It's adjusted so that it discourages her from sitting down on the support beneath her, which makes her tire very quickly.

As you can see, she LOVES it! She was so mad last night when we put her in it for the last time before bed and then took her out after only 15 minutes. She yelled "I wanna go in the walker!!" over and over until we reminded her that she was going to wake up Matthew if she didn't stop it.

I'm so glad that she finally has a walker that fits her, not just that baby walker which is way too small!!

6 comments:

imrieaddis said...: Wow! I hope you all have many hours of fun with Emmas new found freedom. We just received our walker a few weeks ago - a pony walker, and the independance it gives our Emma on walks outside is amazing. Thank goodness for these special aids. Your Emma looks so happy at being up on her feet like a big girl - Congratulations; February 25, 2009 at 4:55 AM
JoAnn said...: Thanks Karen! Yes, Emma feels like a big girl in her walker, definitely!

And she can get into more trouble in the walker too, because she can reach things. She managed to pull several books out of a bookcase and dump them on the floor, which she thought was very funny. :)

I'm so glad to hear that your Emma has a walker too...that's wonderful!; February 25, 2009 at 9:27 AM
L.L. Barkat said...: Came over through These Three Remain. What darling eyes your little one has. And your picture of her in the NICU... hard.; February 25, 2009 at 4:43 PM
JoAnn said...: Thanks, L.L..

It is hard to see Emma in the NICU, hooked up to machines, all four-and-a-half pounds of her. But in many ways it's a triumphal image: there she is, against all odds, yawning in my arms. By the grace of God she made it that far, and she has come so much farther since.

I'm glad you found Emma's blog; I'm a silent fan of your blogs.; February 26, 2009 at 8:02 AM
Willow said...: JoAnn,
Willow here, too.
I realized I misspelled your name. Sorry.
Thanks for your comments about my Koolaid yarn.
We live in SoCal too and see the same stars :)
Go to your gluten free blog. I left you a comment there :); March 1, 2009 at 7:51 PM
Keri said...: Fantastic! I love seeing Emma bare weight. How great is that?

I just love all the pictures. Especially the last one. She's so adorable I could squeeze her to pieces! Not that I would, but you know what I mean...; April 10, 2009 at 11:29 AM

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Purpose of this blog

My daughter, Emma Clarissa, is a beautiful, affectionate, sweet, brave, intelligent little girl who just happens to have multiple serious medical diagnoses.

This blog focuses on her triumphs, challenges and day-to-day life as she contends with both TAR Syndrome (Thrombocytopenia Absent Radii Syndrome, a rare condition which causes skeletal abnormalities and low platelet counts) and GLH Syndrome (aka cerebello-trigeminal-dermal dysplasia, an extremely rare disorder associated with a cerebellar malformation known as rhombencephalosynapsis).

In addition to these diagnoses (or in many cases, because of them), Emma also has microcephaly, global developmental delays, Failure to Thrive, GERD, asthma, and tone and mobility issues (e.g., cerebral palsy).

This blog also provides a place to post helpful links to sites with information on these conditions as well as online support groups. Support groups can be invaluable to parents of children with medical problems, who frequently feel isolated and/or need answers STAT!

WARNING: occasionally a post or comment may contain references to God, or offer thanks or praise to God. We acknowledge His hand in our lives and in Emma's, and thank Him for all He has done and is doing.